Millan Patel – Research Co-Founding Director Helps Children with Rare Diseases

June 12th, 2014  |  Published in Elders & Elderhood, Mentoring, Ron Hering Award

Millan PatelPersonal Mission:

I create an empowered world through the unconditional acceptance of others.

Action in the World:

About 1 in 12 people suffers from one of the 7000 known rare diseases. Millan co-founded an organization, the Rare Disease Foundation, serves on the board of directors and serves as the research director, to provide a new model of care for children and their families affected by rare or previously undescribed conditions. In five years this registered charity has expanded to now offer an international micro-granting program to foster an innovative model of care-focused research. Rare Disease Foundation parent to parent resource networks have also flourished to provide places where the vast amount of knowledge accumulated by parents over their long clinical journeys can be shared and help other parents in crisis. Rare Disease Foundation research programs are designed to develop a set of best practices to dramatically increase the rate at which useful therapies are developed as well as for training the next generation of physicians and scientists.

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